Gode links
Dr Swoboda fra Utah universitys hjemmeside. Dr Swoboda erlæge med ekspertise i SMA type 1 børn. http://medicine.utah.edu/neurology/research/swoboda/sma/index.htm.
"Breathing
basics" - essentielle respiratoriske retningslinier for SMA type
1 børn.
http://medicine.utah.edu/neurology/research/swoboda/sma/PDFs/FSMABreathingBasics.pdf
Consensus
Statement for Standard of Care in Spinal Muscular Atrophy:
http://jcn.sagepub.com/cgi/content/abstract/22/8/1027
A
family guide to the Consensus Statement (forkortet version af ovennævnte
22 siders lange artikel):
http://www.mda.org/publications/family_guide_sma_standard_of_care.pdf
Families of SMA (USA):
http://www.fsma.org/
Our SMA Angels:
http://www.our-sma-angels.com/
Muskelsvindfonden:
http://www.muskelsvindfonden.dk/